Showing posts with label results. Show all posts
Showing posts with label results. Show all posts

Thursday, July 29, 2010

I AM DONE!!!

Well, it's official.  I am DONE with radiation and am CANCER FREE!  I am so excited, I cried tears of joy all the way home from the hospital today. 

Dr. I came in after my radiation today to check on my skin, and he took one look and said, "Wow....that looks....painful.  Wow..."  It's always comforting when the people who are used to seeing this stuff are a little amazed at the extent of the burns!  So, I'm missing a lot of skin, and to be honest, it's pretty painful, but it's all ok, because I AM DONE!   I'll keep burning for a little while, then my skin will start to heal.  It should be less painful in about a week, and probably start looking at least a little better in two. 

So, what now?  Well, several of you have asked that, and have also asked if there's any scans that I go through, or things like that.  So, let me explain.  First, there aren't any scans, because any cancer that could have been picked up on scans was surgically cut out before any of this ever started.  So, at the end of my treatment (TODAY!!!), I am considered cancer-free!  The past months of radiation and chemo have been to ensure that all the cancer has been removed at the cell-level.  So, I am done with cancer!

Now, for what comes next....well, first, we party!(Check out the link if you haven't seen the e-vite yet!)  Then, I'll keep going to my radiologist every now and then until my skin heals.  My next appointment with Dr. I is in 7 weeks.  I'll also start Tamoxifen, which is drug that helps control....something related to cancer....which I'll take for 5 years (note: the horrible job I do of explaining things should not be blamed on my doctors.  They honestly do a great job of explaining, I just forget a lot of this stuff, and I can't find my notes!).  I'll keep seeing my oncologist every 3 months for awhile to monitor any side effects I experience with that drug.  And, finally, at some point, I'll go back to my surgeon, Dr. K, to get my port removed.  That will probably happen later this fall, when I've recovered a little more from everything else I've had done.  So, I still have more stuff to do, but the cancer is GONE!

I think it will probably hit me more fully later, but for right now, I am just incredibly grateful to God for allowing the treatments to be successful, and incredibly happy to be done and cancer free!

Taste and See that the Lord is good!

Saturday, May 22, 2010

Round 8 - the end is in sight!

Wow.  I got round 8 done yesterday.  I can hardly believe it!  It seems surreal.  When I was diagnosed on January 6, it was such a scary time, I didn't have a clue what my life would be like in 6 months - or for that matter, if I would even be alive.  When I started chemo on February 12, I had learned a lot more about my prognosis, and knew that my long term outlook was good, but 4 months of chemo seemed like it would never, ever end.  And now, yesterday, May 21st, I had my last one.

On one hand, I want to do a dance, scream and shout, and party like it's 1999.  On the other hand, I know that I still have a couple more weeks of intense pain to get through, and it's going to be really hard.  But I know that, by the grace of God, I can get through it.  By His strength, I can make it, and find joy in my salvation despite the pain.

The lady who accesses my port each time (in non-cancer terms, puts the IV into the port that I had surgically put in), Leona, gave me a huge hug yesterday.  I'll never forget the first time she accessed it - I was shaking so hard that it took forever, and she had to physically push me back into the chair so that she could do her job.  She was so kind she made me cry, and we've gotten to know each other quite a bit over the last 4 months.  I'll really miss her!

My absolute favorite chemo nurses were there, too, Angie and Trish.  I've really liked all the chemo nurses I've had, but I've had these two the most.  Trish was the one that took care of me the first day.  She put up with a crazy amount of weird questions, and never made me feel stupid once.  When she was teaching me how to give myself the shots, she even showed me how to inject them on herself (with saline, of course!), and when I asked her if I was in any danger of puncturing important organs, like my kidneys or spleen, she was very gracious when she assured me I was not, and in fact, she had never heard of anyone piercing organs with a half-in needle, and was pretty sure it was impossible.

A few medical details from yesterday:
First, the good, great, and wonderful news:  NO MORE SHOTS!!!!!  My doctor was feeling very generous yesterday, and said I am DONE with those awful, horrible little things.  I almost hugged her, but I'm not sure she's the "hugging" type.  She did, however, smile a lot at my enthusiastic response. :)

Also, I can start using Latisse to help jump-start my eye-lash regrowth.  I'm pretty excited for that, since I literally have a grand total of 8 eye lashes left.  No exaggeration.  I'm looking forward to them growing back! 

I am going to start a 5-year hormone drug.  It starts with a T, but I don't remember the name.  However, it can potentially cause blood clots in your legs, so my doctor measured my calves to see where our starting point was.  She found that my right calf measured larger than my left calf, and since the chemo drugs can potentially (though rarely), cause blood clots too, I had to rush right over to the hospital for an ultrasound on my leg after chemo.  It was pretty scary, since the possible outcomes ranged from "nothing at all, I just have weird legs" (not exactly how they termed it, but I think that's what the medical jargon meant), to admitting me into the hospital immediately and holding me there until they fixed the clot, if I was lucky.  So, that was a little nerve-wracking, but we just prayed that everything would turn out alright.  And, while the procedure was uncomfortable, the (un)official results are that I'm fine!  The doctor still has to "approve" the results, but the tech said that she always airs on the side of caution, and saw absolutely nothing that looked abnormal.  And she even did both legs for comparison.  So, thankfully, I just fall into the "weird legs" category.  Praise the Lord for that!

I will be getting the radiation process started in a few weeks.  I know that I will have to go through a "mapping" process, where they "map" out the area on my body for radiation.  Most of the time they make you get tattoos, but yesterday, I found out there are actually alternatives to tattoos, involving super sticky things that you have to keep covered in bandages when not in the office.  I've heard they're more work for the doctors, and more upkeep for me, but it would be completely worth it to me to not have little grey dots all over.  Radiation will be 5 days a week, and I think that will go for 6 or 7 weeks.  I've been so focused on getting through chemo, that I still have a lot to learn about radiation, so I'll keep you posted as I find out more!

Well, I still have a few hours left before it all starts to hit.....and with that time, I am going to a dear friend's wedding.  I've never attempted such a big outing so quickly after chemo, so I am hoping and praying that I make it through!

And, a photo from yesterday.  My friend Katie was also there, so left-right across in the back is Katie, then Angie & Trish, with me in the front.  I am so glad to be done with chemo, but will miss seeing them! I'll have to stop by to say hi every now and then.

I'll keep you posted on my progress as I get through this last round.  I'll be ready for more celebration when I'm done with all the pain from this round.  And I'll REALLY be ready to celebrate in August when I'll be done with everything! 

Thursday, April 15, 2010

Woo hoo!

Thank you so much to all of you who prayed for my appointment today.  Praise the Lord, I don't have to take anymore shots this round!  So, I have 15 total shots left.  With continued prayer, I can do this, and the joy of the Lord will be my strength.


I wanted to share a song that I've been listening to over and over lately - Your Hands, by JJ Heller. It's about resting and trusting in the hands of God, despite hard times.  It focuses on the fact that God is constant and trustworthy when all of life is unreliable and uncertain.  It's been so comforting to me lately.  I posted the lyrics below, and pray that it will be a blessing to you too!





Lyrics:
I have unanswered prayers
I have trouble I wish wasn't there
And I have asked a thousand ways
That You would take my pain away
That You would take my pain away

I am trying to understand
How to walk this weary land
Make straight the paths that crookedly lie
Oh Lord, before these feet of mine
Oh Lord, before these feet of mine

When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands

When You walked upon the Earth
You healed the broken, lost, and hurt
I know You hate to see me cry
One day You will set all things right
Yea, one day You will set all things right

When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands

Your hands
Your hands that shape the world
Are holding me, they hold me still
Your hands that shape the world
Are holding me, they hold me still

When my world is shaking
Heaven stands
When my heart is breaking
I never leave You when...

When my world is shaking
Heaven stands
When my heart is breaking
I never leave...
I never leave Your hands


For more JJ Heller: www.jjheller.com

Tuesday, January 26, 2010

Brace yourself, this could be a long one

Well, yesterday, I started appointments at 9:15am, and didn't get home from the hospital until 3:30.  And we drove through blizzard conditions to get there.

My mom and Dave were both there with me to help me sift through information, take notes, and keep me company through an incredibly long day.

So....here we go.  We found out that although the initial pathology reports came back showing the tumor to be smaller than we thought, at it's fullest size, it's actually larger than they thought.  Bummer.

Since it's spread to the sentinal node, my medical oncologist is recommending that we remove 6-10 more nodes to test for further cancer, which may change our radiology plans down the road, and if most or all of the nodes come back cancer-positive, then I would also undergo further testing to see if the cancer has taken root in another part of my body.  I'm planning to get a second opinion on this plan of action tomorrow, but I anticipate that the second opinion will most likely support this.  There are other alternatives, but this is the most aggressive way to fight my form of cancer, which makes it the "safest" route.

So, I'll be having (another) surgery on Friday.  Yep, this Friday.  Then I'll go through a few weeks of healing, then start chemo.  I will probably start chemo on either the 12th or the 19th, then I'll have chemo every other Friday for 4 months.  May I just tell you, I am not looking forward to this.  Not only will I be bald and need a wig, and my eyelashes might fall out, and I had to find out all about tons of side effects (you know, which ones are "normal," and which ones I have to call the overnight doctor asap for), but I have to give myself shots 5 days out of every 2 weeks for 4 months of treatment.  SHOTS.  I nearly passed out when I had to get the H1N1 vaccine when they came at me with the needle.  Better start praying for strength now.

After all that's done, then I'll be doing radiation, for probably 5-6 weeks, 5 days a week.  I'll basically be getting a tan, just a very uneven one.  So far, in spite of the inconvenience for scheduling, that sounds like the easiest part of this process.

Many of you have asked, via email, phone, text, etc, how we're doing with all of this.  So, to answer, we are very, very tired.  And overwhelmed with so much information. I have two more appointments tomorrow, had 6 hours of appointments yesterday, and have my second surgery (3rd if you count the double biopsy, though that's not technically a surgery) of the year.  And it's just January.

People have said that I'm brave, or handling this really well, or things like that.  So here's even more honesty.  I can't speak for Dave, but there are days that I feel like I just can't do this anymore.  Many of you may not know this, but this past December was our 3 year mark of trying for kids.  I have been on fertility meds since spring of 2008 - and they were really hard on me, and on us. I have literally felt sick from day 1 of the meds.  We had just decided to take a break from the fertility drugs for a bit, because I just couldn't do it anymore. The effects of the drugs hadn't quite worn off when I got my diagnosis of cancer.

And, to add to all of this, my cancer is estrogen-positive.  To boil that down, that means estrogen feeds my cancer, and I'll have to take an anti-estrogen pill for 5 years.  And we'll probably never be able to have biological kids.  In fact, I may go through menopause at the age of 28.

There's an Andrew Peterson song that really speaks my heart.  I copied the lyrics below.  You can listen to it on YouTube here (I have no idea what the video is about, but you can open it in a different window and just listen to it).

Lyrics to Faith To Be Strong :
Give us faith to be strong
Father, we are so weak
Our bodies are fragile and weary
As we stagger and stumble to walk where you lead
Give us faith to be strong

Give us faith to be strong
Give us strength to be faithful
This life is not long, but it's hard
Give us grace to go on
Make us willing and able
Lord, give us faith to be strong

Give us peace when we're torn
Mend us up when we break
This flesh can be wounded and shaking
When there's much too much trouble for one heart to take
Give us peace when we're torn

Give us faith to be strong
Give us strength to be faithful
This life is not long, but it's hard
Give us grace to go on
Make us willing and able
Lord, give us faith to be strong

Give us hearts to find hope
Father, we cannot see
How the sorrow we feel can bring freedom
And as hard as we try, Lord, it's hard to believe
So, give us hearts to find hope

Give us faith to be strong
Give us strength to be faithful
This life is not long, but it's hard
Give us grace to go on
Make us willing and able
Lord, give us faith to be strong
Give us peace when we're torn
Give us faith, faith to be strong
We are tired. We are sad.  And I don't feel very brave. There are days where the ache is so deep, the pain so intense, that I feel like I can't breathe.  I have times where I am so tired of feeling sick from fertility and now cancer, so weary of doctors and tests and bad news, that I just cry. We aren't trusting God through this because it seems like the "good" thing to do.  We're trusting God because we are in so much pain that we don't have any other choice.  We don't have faith in God because we're just that great, we have faith in God because only He can bring us through this.   His grace will be sufficient for us.

"Taste and see that the Lord is good; blessed is the man who takes refuge in Him."

It's our only option.

Tuesday, January 19, 2010

Final Surgery Results

Well, this is sort of a good news/bad news thing.  Let's start with good news:  The cancer lump was smaller than they thought - 1.4 centimeters instead of the 1.8 that they thought.  Also, they got the entire lump, with clean margins (they take a little around the whole lump to make sure nothing gets left behind, so clean margins means that they were successful in this).  All good so far!

Next, the lymph node.  Not so good.  The lymph node showed cancer in the pathology reports, which means that the cancer had started to spread.  To be honest, I'm just disappointed. But, it is what it is, so here we are.  This means a couple of things:
1. It wasn't detectable in surgery, only in pathology, which means it's a very small spot, and likely was just beginning to spread.
2. I may have to have another surgery to have more lymph nodes removed (Big bummer.  My incision from the first one is REALLY sore). 
3.  I will for sure have to have chemo.
4.  I may also have to have surgery to insert a port for the chemo IV's and blood draws.  If I end up needing both this and #2, then these can be combined, and will be performed on the 29th. 

My next step is to meet with my surgeon, then my medical oncologist, then my radiation oncologist on Monday morning.  It will be a long morning of appointments! After that, though, we're start getting a plan in place for chemo, radiation, etc.

I am feeling pretty drained right now.  I had really hoped for better news, but know that even now, God is in control.  You can keep praying for us, we are both really tired, disappointed, and sad.


In the meantime, I have been working on feeling better after this surgery, which has felt like no small task!  My parents were here over the weekend, and between them and Dave, I was waited on hand and foot.  Also, friends and family around the area have been delivering meals to us, and that has an incredible blessing (good food, too!!).

I am feeling better today than I was yesterday, and hope to feel better still tomorrow.  I've been having some problems with the medicine they've given me for pain, however, and we're currently trying to work out a different pain management solution, so you can pray that goes well.


That's all for now - thanks for caring, and thanks for praying!

Friday, January 15, 2010

Kelli's surgery

Hi, this is Dave posting for Kelli.  After a long day at the hospital, the surgery is done and we are back home.  Kelli is recovering on the couch with an electric blanket, Yarbo and a bowl of peanut M&Ms (Thank you Erica!)

When it was complete, the surgeon came and talked with us.  The good news is that the surgery went as expected.  The preliminary results are good - so far it appears that the cancer hasn't spread.  We won't get the final results until Monday.  Then we will know if the tumor was completely removed and if the cancer has spread.  Thank you for all your support and prayers.

Wednesday, January 6, 2010

Horrible news.

From an email sent Wednesday, Jan 6th:
Thanks to all of you who have been so encouraging thus far - it's meant so much.  The procedure on Monday was painful, but went ok.  Then we had to sit around and wait for the results.....

The procedure was successful on removing the spot they found on my left breast, and the matter was found to be non-cancerous.  That's the good news.  However, the biopsy on the right side came back as cancer.  I meet with the surgeon on Friday to find out how much they'll remove, and when.  Everything else will depend on what they find in surgery.  The surgery to remove it will probably happen in the next couple of weeks. They said the lump is very small, and that's really good. 

So, I officially have breast cancer.  I'm only beginning to process that.  But, for everyone who will keep praying with me, here's a few requests:

1.  That the cancer will be self-contained.
2.  That they will be able to remove only the lump (ie, avoid a mastectomy)
3.  That it will not have spread to my lymph nodes (I don't full understand the implications of that, but I know it's a big deal)
4.  Peace of mind.  We are both so overwhelmed.
5.  That details would come together.  I just started a new job, and have a piano studio that I will need to figure how to deal with in regards to surgery schedules and such.   Taking time off will be necessary, but isn't a simple task at this point in my life/job status.

God has continually made his  presence known  - through support from some of you, and bringing verses to mind throughout the day.  One set of verses that I've particularely meditated on is Psalm 34:1-8.  I copied it below, in hopes that you guys can enjoy it too.

Thank you in advance for your prayers.

Love,
Kelli & Dave
Psalm 34

 1 [a] I will extol the LORD at all times;
       his praise will always be on my lips.
 2 My soul will boast in the LORD;
       let the afflicted hear and rejoice.

 3 Glorify the LORD with me;
       let us exalt his name together.

 4 I sought the LORD, and he answered me;
       he delivered me from all my fears.

 5 Those who look to him are radiant;
       their faces are never covered with shame.

 6 This poor man called, and the LORD heard him;
       he saved him out of all his troubles.

 7 The angel of the LORD encamps around those who fear him,
       and he delivers them.

 8 Taste and see that the LORD is good;
       blessed is the man who takes refuge in him.